Brain Recovery Project:
Organization designed to help children reach their full potential after brain surgery to stop seizures.
Cerebral Visual Impairment (CVI) Scotland:
CVI Scotland is devoted to helping people understand cerebral visual impairments, and together working towards beginning to master this complex spectrum of conditions.
CVI Information Day Presentation:
A fifty minute video of Gordon Dutton's presentation at a CVI Information Day that offers a comprehensive introduction to vision and cerebral visual impairments.
Sharing & Developing Our Understanding of CVI:
Guide for Parents.
Pediatric Cortical Visual Impairment Society:
The mission of the Pediatric Cortical Visual Impairment Society (“the Society”) is to advocate for improvement in the quality of life of children with vision loss due to brain disorder, disease or injury. The mission is restricted to matters concerning the sense of vision.
The Perkins School for the Blind:
Offers on-line courses, lectures and informational sessions.
The American Foundation for the Blind:
Textbooks associated with education of children with CVI.
The American Printing House for the Blind:
Products for students with CVI.
The American Conference on Pediatric Cortical Visual Impairment:
Interdisciplinary conference for professionals and parents, usually held in late June.
Strategy To See’s:
The mission is to provide strategies, suggestions and techniques to parents, caretakers, teachers and other action heroes, who hope to encourage more consistent and efficient use of vision in children with Cerebral/Cortical Visual Impairment.
Website with webinars on children with visual impairment and visual development.
iPad app for CVI and a community of professionals and technology that offer hope and confidence in the form of personalized education for children with CVI.
Parent Support Groups:
School Design & Vision Impairment:
The development of a new school for children with multiple disabilities and visual and hearing dual sensory impairment presents particular challenges in design, equipment and staffing. The environment of the school should ideally allow children to be as in dependent as possible.The design of the school needs to take into account the sensory and central processing functions of the children so that the impediments caused by these limitations are minimised. Such an approach is likely to lead to enhanced learning with fewer resources and should therefore prove both beneficial for the children and cost efficient. This paper provides a preliminary set of ideas from the perspective of an ophthalmologist who looks after these children.
The Importance of Vision:
Why is the vision so important? What special role does it play in learning and guiding development from the moment of birth? What is the value of good visual functioning? How does vision affect and impact the development and activities of daily living of children and adolescents?
Vision After Hemispherectomy, TPO Disconnection, and Occipital Lobectomy:
An Introductory Guide
Vision Evaluations after Epilepsy Surgery
Zika Care Connect:
The Zika Care Connect website contains information to help pregnant women and families find the appropriate healthcare professional and resources that can address their specific needs.
Healthcare Professional Network – a searchable database of healthcare specialists who provide care for pregnant women and infants affected by Zika
Healthcare specialties include maternal-fetal medicine, mental health, audiology, radiology, pediatric ophthalmology, pediatric neurology, developmental pediatrics, infectious disease, and endocrinology
HelpLine – a call line staffed from 9 a.m. to 5 p.m. ET by professionals who can help answer questions and provide referrals to healthcare professionals in the Zika Care Connect network
Downloadable Materials for Patients, Families, and Healthcare Professionals – fact sheets, charts, checklists and other documents about Zika
- Frequently Asked Questions – answers to common questions about Zika and Zika Care Connect