Support Groups and Associations
The Achromatopsia Network is an information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
American Nystagmus Network
The American Nystagmus Network, Inc. is a nonprofit organization that seeks to serve the needs and interests of those affected by Nystagmus.
American Association of Certified Orthoptics and the American Orthoptic Council
The American Association of Certified Orthoptists (AACO) is a membership organization with a mission to promote and advance the professional and educational competence of orthoptists.
Aniridia Foundation International
Aniridia Foundation International is a 501(c)3 non-profit charitable organization dedicated to assisting those with low vision or blindness due to the genetic blinding eye disease Aniridia.
Association for Retinopathy of Prematurity and Related Diseases
The mission of the Association for Retinopathy of Prematurity and Related Diseases is to eliminate retinopathy of prematurity and associated retinal diseases by funding clinically relevant basic science and clinical research.
Delta Gamma Center for Children with Visual Impairment
The Delta Gamma Center for Children with Visual Impairments is committed to helping children who are blind or visually impaired reach their full potential through individualized education and therapy services for infants (birth to three years) and their parents and through support services for children of all ages, their families and the community.
Guide Dogs for the Blind
While our primary guide dog programs serve adults, Guide Dogs for the Blind also seeks out ways to engage youth who are blind or visually impaired wherever possible. We have several free programs that provide youth and their families the opportunity to explore the guide dog lifestyle starting at a young age including our K9 Buddy Program, Camp GDB, and Guide Dog Lifestyle Workshops.
The Histiocytosis Association of America is dedicated to helping those dealing with the effects of rare histiocytic disorders by providing a variety of educational programs and emotional support services. In addition, the Association promotes examination of histiocytic disorders through scientific and medical research, with the aim of establishing better treatments, a cure, and ultimately, prevention of the diseases.
Hope for Sight
Hope for Sight is a support group and informational site for individuals and families living with corneal dystrophy. The site lists information about the latest research and studies for all types of corneal disease and available treatments.
Institute for Families
Institute for Families provides consultation and therapy for families whose child is suffering from a devastating illness. Our goal is to meet families soon after they receive the diagnosis, either in person or over the telephone.
The International Dyslexia Association
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them.
International Society for Alstrom Syndrome Families
The International Society for Alstrom Syndrome Families is committed to providing support, information, and coordination worldwide to families and professionals in order to treat and cure Alström Syndrome.
International Society for Genetic Eye Diseases
The mission of the International Society for Genetic Eye Disorder is to: bring together individuals interested in the field of genetic diseases of the eye and in Retinoblastoma; provide a forum for researchers in the field of genetic diseases of the eye to share information; promote international collaborations in the study of genetic diseases of the eye and in Retinoblastoma; and disseminate scientific knowledge through international conferences and through its official publication, Ophthalmic Genetics.
Micro and Anophthalmic Children's Society
MACS offers support and information to parents and professionals in the UK and around the world. Macs also give parents, families and children the opportunity to meet each other, support each other and learn from each other.
National Organization for Albinism and Hypopigmentation
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them.
Parents of Galactosemic Children
Parents of Galactosemic Children, Inc. (PGC) is a national, non-profit, volunteer organization whose mission is to provide information, support, and networking opportunities to families affected by galactosemia.
Pediatric Glaucoma and Cataract Family Association
The mission of the Pediatric Glaucoma and Cataract Family Association is to promote the quality of life for children with glaucoma and cataracts and their families by providing information, support, resources, and education.
Pseudoxanthoma Elasticum International
PXE International initiates, funds, and conducts research; provides support for individuals and families affected by pseudoxanthoma elasticum; and provides resources for healthcare professionals.
Septo Optic Dyslpasia Support Group
FOCUS Families provides "Information, Education and Support" ™ to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.
Usher Syndrome Coalition
The Usher Syndrome Coalition’s mission is to raise awareness about Usher syndrome as the leading cause of deaf-blindness, encourage and to provide information and support to individuals and families affected by Usher syndrome.